Tuesday, April 17, 2012

World Hemophilia Day

Every year on April 17, World Hemophilia Day is celebrated around the world in order
to increase awareness of hemophilia and other inherited bleeding disorders. World Hemophilia Day was established in 1989 by the World Federation of Hemophilia (WFH) in honor of the organization's founder Frank Schnabel, who was born on that day.

This date is especially important in my family. Amber and I have four children with hemophilia, including our youngest, Elise Mae, who was born on April 17, 2008. It is our hope that the global community will develop a cure by the time she has children. Until then, help us spread the message to “Close the Gap” of care around the world. Together, we can work towards a day when treatment will be available for all globally.

Source: World Federation of Hemophilia